Hyper IgM Foundation, a non-profit organization, was founded in 2015 by dedicated parents, healthcare professionals and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM through research, support, education, and advocacy to families and patients.
Knowledge is power. Learning all you can about Hyper IgM will empower you to make better health decisions for you and your family. We have tried to simplify the information out there so you can better advocate for yourself when facing tough decisions.
Hyper IgM Syndrome is a very rare disease that affects only 1 in 1,000,000 individuals. You are not alone! You can connect with other patients, parents and caregivers in the Hyper IgM Support group run by our members in Facebook.
Help us fulfill our mission to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM through research, support, education, and advocacy to families and patients.
The Hyper IgM Foundation has been a great place for everyone to connect, get up to date information and have the ability to get in contact with some of the most knowledgeable experts on Hyper IgM.
I’m so happy that there is finally a support group for all of us! I really thought I was alone!
My son has X-Linked Hyper IgM syndrome. Before connecting with the Hyper IgM Foundation I knew no one outside of my family with this, and now I have a bunch of friends around the world who understand what I am going through.
Pras Ranaweera is a Senior Program Officer on the K-12 education team at…
Patient Education & Support Coordinator
Jennifer serves as the Hyper IgM Foundation's Patient Education & Support Coordinator. She…
David Hagin, MD, PhD, is a physician in the Allergy and Immunology department at…
Amanda Zablocki is a founding board member of the Hyper IgM Foundation. Her…
Akiva Zablocki is the founder and president of the Hyper IgM Foundation. As…
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Improving the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM.
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